Which isn’t always the full truth. What makes honesty so challenging to achieve in the doctor's office? Why do patients feel that total transparency isn’t encouraged, or embraced?
We asked some patients for their perspectives, and here is some of what they shared:
“I actually try to be super honest but sometimes I find doctors to be leading with wanting specific answers. There’s also the guilt. I don't care what the doctor thinks of me but honesty invites more guilt to myself that I'm not doing better.”
“I'm afraid of being labeled ‘non-compliant.’ We have a laundry list of things to do and if I only get nine out of ten done, then I feel like a failure, instead of celebrating the nine things I did well! I struggle with this.”
“I think, for me, I know what I should do. But in reality, doing it every day is exhausting and I get sloppy. But I'm not sure my doctor could ever understand that. So I don't feel I can admit it.”
“Because we know what we are supposed to do, but no one can do the "right" thing 100% of the time and we don't want to be critiqued for it. I LOVE my medical team, but I still don't want them to think I am not 100% perfect.”
Even clinicians found themselves hesitant to share fully during their own visits as a patient. One shared, “I'm a doctor and even I find myself stretching the truth about how much I exercise when I see my endo. It's almost feel more pressure as a doctor to stretch it because I feel there are certain things expected of me- that somehow I'm not allowed to be human.”
Another said, “My perception, when people lie, is that they've been scolded or "yelled at" for not following their prescriptions perfectly, so they are afraid it'll happen again. Once I validate their struggles, the entire conversation changes. Unfortunately, many clinicians don't have time to do that.”
So none of us are perfect, but we're not sure how much imperfection we're allowed to share before we put our care at risk?