Hear Why We Revolt

Why We Revolt Audio File

In a series of brief and personal essays, Why We Revolt describes what is wrong with industrial healthcare, how it has corrupted its mission, and how it has stopped caring. We propose a revolution of compassion and solidarity, of unhurried conversations, and of careful and kind care.

Reading the words that Dr. Victor Montori has penned can change your views on healthcare and inspire you to take action to improve our collective experience.  You can also download an audio version of Why We Revolt on Amazon

In efforts to share this vision of the Patient Revolution live and in-person with clinicians, students, and the general public, Victor has been traveling to cities across the country, offering insight and conversation, in addition to readings from Why We Revolt. His schedule can be a little tricky to navigate but if you'd like to talk to Victor about visiting your organization or community, email him

One Simple Action

"This medication makes me feel terrible all the time but my doctor said I have to take it."

"They told me I had to switch medications based on my insurance coverage."

The healthcare system as a whole feels large and looming, like a mountain whose shadow we stand in at all times.  Changing the system?  That feels like an incredibly daunting call to action.  Where do we start?  What actions matter most? 

As patients, oftentimes we're not asked what we want or need, but instead told.  Once we start questioning the system, it becomes an exhausting cycle of power struggles between departments, insurers, receptionists, and pharmacies.  Feeling equipped and empowered to change things can be a challenge, depending on what health circumstances we're navigating at any moment, and when you're dealing with a health condition, adding "system change" to your to do list can be daunting.  

One simple action

But it's time to move out from under the shadow of that giant healthcare mountain.  We might not be able to move it, but we can start to tunnel through it, drawing awareness to it and using small changes to help pave the way towards careful and kind care.  

What small changes could you make during your clinical encounters in effort to up the empathy and empowerment quotient?  One suggestion we heard was for a patient to wear a button that says, "Please look me in the eye" or "Ask me about my emotional health."  Another suggestion we heard from a patient was to have the clinician ask, "How are you doing, and what are your goals for this appointment?" at the beginning of the appointment.  

Resources like our Plan Your Conversation cards and the Reflection Document can help patients self-identify what information is important for their clinician to know and can assist in guiding conversations to put patient goals and clinician goals on equal footing from the outset.  

Championing empowerment to people who think healthcare is something that happens to them is hard, but not impossible. We know the script seems set, but it is more flexible than you think. Tell one detail about your life that you normally wouldn't and the power dynamic can shift and equalize, pushing closer to careful, kind, and empathetic care.  

Share your ideas on how you can change your healthcare experience with one simple action by emailing submissions@patientrevolution.org or connecting through Facebook or Twitter.

Empowering the Whole Patient

On January 26th, the Patient Revolution team partnered with @PatientChat to help facilitate a discussion about patient empowerment and helping improve patient and clinicians interactions.  We centered our discussion around our Reflection Tool, which encourages discussions between clinicians and patients that help foster more empathy and interaction.  Here are some highlights from the chat. 

(To view the full chat transcript, you can find that here.)

Thanks to all of the patients and clinicians who participated in the chat!  If you'd like to use the Reflection Document as part of your next clinical encounter, download a copy here.  You can follow the Patient Revolution Twitter feed via @PatientRev.

The Revolution Will Be Podcasted

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Dr. Victor Montori joins podcast host and patient advocate Christopher Snider this week on the Just Talking podcast.  They chat about Victor's experiences growing up in Peru, defining his medical career at Mayo Clinic’s Knowledge and Encounter Research Center, the importance and value of love in conversations with patients, the reasons for Why We Revolt: A patient revolution for careful and kind care, and the mission behind The Patient Revolution.

You can listen to the podcast by clicking the link below, or by visiting the Just Talking website

Join us for #PATIENTCHAT

On January 26th at 10 am Pacific/1 pm Eastern time, the @PatientRev team will be partnering with @PatientChat for the second #patientchat of 2018.  We'll be using our Reflection Tool to help clinicians and patients alike treat the whole patient.  


To join the chat, sign into Twitter at 10 am Pacific time/1 pm Eastern on January 26th and follow #patientchat.  We're looking forward to having you join the discussion!

Postcards from a Patient Revolution

What does a Patient Revolution look like?  People in the patient community are raising their voices:

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Want to share postcards from your Patient Revolution?  Send your photos and captions to submissions@patientrevolution.org.  We want to hear from you! 

Be sure to follow us on Instagram at @PatientRevolution, and keep up with the hashtag on Facebook and Twitter with #patientrev.  And thank you for being part of the revolution!

Who Pays for Love?

“I am standing behind a set of very bright orange books. Why We Revolt and its author patiently wait to engage holiday-shopping people at the Barnes and Noble store within the massive Mall of America in Minnesota. As I recall that Sunday, one couple stands out.

Against the glitter and color, they appeared gray-scaled, as if they were wearing their black cloud. She was sitting on a wheel chair, and he was pushing it, but both were leaning forward and looking tired. They travelled past my book display, but our Patient Revolution poster caught his attention. He stopped, read a bit more, and then pulled the chair back so that both could read it.

‘Hi there! Do you want to know more about this book?’

‘What is it about!’

A demand more than a question.

As they resisted eye contact, looking down or at the poster, I described the book: ‘It is a series of essays and stories, the first group about how healthcare has stopped caring; the second about careful and kind care.’ I spoke about how we must change healthcare from an industrial operation fueled by greed and often cruel to one based on solidarity and capable of caring with love.

He looked up at me and asked another question-demand: ‘And who is going to pay for love!?’

Before I could answer, they moved further into the store, wheeling toward aisles marked Poetry and Romance.”

Heart Stethoscope

Who is going to pay for love? 

Victor shared this experience with the Patient Revolution board a few weeks ago, the moment when he was confronted by the concept of monetizing kindness.  The Patient Revolution is about bringing careful and kind care back to the patient and clinician experience.  It’s about opening this onion of healthcare and finding the humanity trapped inside; no more layers keeping patients and clinicians from seeing one another as people.  

When Victor told us this story, I couldn’t stop thinking about it.  The board meeting progressed and I was tuned in but there was this nagging thought, the accusatory question of “who pays for love?” 

I’m not sure there’s an easy answer to who owns the line item for love, but I have seen the price we pay without humanity as part of the healthcare equation.  I’ve seen what loveless care looks and feels like.  It's the diagnosis of a health complication given to a computer screen instead of to my face.  It's asking if I have insurance coverage instead of "Are you okay?" while my child is sobbing and throwing up in my arms.  

Oftentimes, we look at the healthcare system as this giant hydra, all the heads spitting and arms flailing, an insurmountable, unconquerable enemy that we need to dodge and weave to get past.  And while “the system” can seem like an overwhelming, daunting monster, it’s not.  At the core of “the system” are “the people,” and our voices need to be heard again.  Yes, we need to work within the confines of billing codes and scheduling conflicts, of insurance companies and pharmacy benefit managers, but there are small changes that can make a world of difference NOW, without needing to implement huge, sweeping changes. 

A revolution is not coming; the revolution is here.  It thrives within each patient who is honest with their clinician about their health concerns and who pushes for compassionate care.  It grows within each clinician who asks their patient, “Did I get it?” at the close of each visit.  The revolution has roots in the relationships between patients and clinicians who see one another as fellow human beings.  It can start by feeling heard.  And being seen.  And it can flourish by being partners in the journey towards good health.

Who pays for love?  I remain unsure, but the cost of letting healthcare remain heartless is a higher price to pay than any of us can afford.  We need to start truly and openly sharing why love matters in healthcare; it starts with our voices and our stories.

Have you experienced love as part of your healthcare experience? What happened? Did it make a difference?  How did you know?  Share your story with the Patient Revolution team through Facebook, send us a Tweet, or email us at support@patientrevolution.org.

Panel Discussion - Monday, Dec. 18th

Citizen action

Join us Monday, Dec. 18th at 5:30pm ET


Victor Montori MD

Paul John Scott

Monika Duitch DNP, CNP, RN

Why We Revolt

Café Steam in Rochester, MN will host an engaging panel of on the problems facing our healthcare system and the need for a new model of careful and kind patient care. We will be discussing Dr. Victor Montori’s new book Why We Revolt: A patient revolution for careful and kind care and the actions of a grassroots movement that fights back against industrial healthcare.

Victor will be joined by Paul John Scott and Monika Duitch. If you can't attend the panel in person, it will be broadcast on Facebook LIve.

WIHI: The Careful and Kind Patient Revolution


According to the Institute for Healthcare Improvement website, "WIHI is IHI's free "talk show" program that helps health care improvers keep up with the freshest and most robust thinking and strategies for improving patient care." 

And last week, co-founder Dr. Victor Montori, director Maggie Breslin, and board member Kerri Sparling of the Patient Revolution team members visited with WIHI last week, talking about the current healthcare system and how to bring careful and kind care to patients and clinicians alike.

You can listen to the radio show below!

A Patient Revolution Looks Like ...

At the heart of careful and kind health care, we find people talking with and listening to each other. And yet these powerful acts of honest discussion are often dismissed because they seem so ordinary. We want to try and shine a light on the power of conversation and engagement. We want you to draw from past experience and your vision for the future to tell us what a patient revolution looks like.

Maybe a patient revolution looks like a clinician saying "I didn't know that about your life."  (We heard this from a clinician who used our reflection tool!)
Maybe a patient revolution looks like a doctor giving you a lizard to carry around in your purse to remind you to quiet your lizard brain. (We heard this story from a #DSMA twitter chat.)

What does YOUR patient revolution look like? 


Please share what a patient revolution looks like to YOU by sending your photos and captions to submissions@patientrevolution.org.  We want to hear from you!  And we want to share your stories, because they matter the most. 

Be sure to follow us on Instagram at @PatientRevolution, and keep up with the hashtag on Facebook and Twitter with #patientrev.  And thank you for being part of the revolution!