Repairing broken trust

I’ve read many point of view stories about the deterioration of the patient-clinician relationship, detailed essays about the ways in which miscommunication or lack of communication fail both parties and lead to hurt feelings, regret, frustration, and suffering. But I can’t remember many stories of attempts to repair; to acknowledge, forgive and try again.

In her essay, Trust is the Essence of the Doctor-Patient Relationship, Sharon Ben-Or, MD, a physician who plays the role of patient in this story, details the unique and yet utterly common way in which trust can be eroded and then the simple, yet herculean effort necessary to try and repair it. This is a skill that all of us - patients and clinicians - need to get better at. Having a glimpse into what all parts of that look and feel like, seems like a good way to start.

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Have you got a story about trust eroded and trust repaired? Tell us!

Love and Healthcare - It's a Thing

In December, we held our monthly #WhyWeRevolt Tweetchat, and our discussions centered around the concept of love and healthcare. Here’s a brief recap of what we covered:

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Giving Tuesday

#GivingTuesday is a global day of giving fueled by the power of social media and collaboration.

Celebrated on the Tuesday following Thanksgiving (in the U.S.) and the widely recognized shopping events Black Friday and Cyber Monday, #GivingTuesday kicks off the charitable season, when many focus on their holiday and end-of-year giving.
— https://www.givingtuesday.org/

In honor of this tradition, scheduled for November 27th, the Patient Revolution team has extra “thanks” for our community supporters.  By making a tax deductible donation to the Patient Revolution, you’re helping support our outreach and empowerment programs designed to foster careful and kind healthcare.  You can find out more about our programs and outreach here.

And by making a donation this Giving Tuesday, you’ll also have access to exclusive content, like our Why We Revolt digital book club resources, including a discussion guide for the book, samples of our conversation tools, and an interactive book club discussion video from author and Patient Revolution co-founder Victor Montori.  (It’s a fun one - you’ll like it!) 

Your support for the Patient Revolution is critical to help change healthcare from something cruel and industrialized to care that is careful and kind.  For everyone.  Thank you for sharing our vision and supporting our mission.

#WhyWeRevolt and How We Tweetchat

Interested in checking out our #WhyWeRevolt Tweetchats but unsure how to jump in?  Here are some tips and tricks for joining and engaging in our monthly online discussions:

1.     What’s a Tweetchat?  A Tweetchat is a discussion that takes place through Twitter.  At a specific time (ours is 6 pm PT/9 pm ET on Monday, November 12), Twitter users log on and follow the #WhyWeRevolt hashtag and the @PatientRev Twitter account for the discussion questions.  Each question is numbered and when you participate, you use those same numbers in your answers (to help keep track of the discussion).  Check out this post about one of our previous Tweetchats for an example of what that might look like.

2.      Sign up for a Twitter account.  While you don’t need a Twitter account in order to lurk on our open discussions, you’ll need one in order to actively participate.  Go to Twitter.com and sign up for an account – you can use your computer or an app on your smartphone to walk you through the sign up steps.

3.     Follow @PatientRev.  The Patient Revolution team has a Twitter account and the questions are sent out from that account.  Follow us at @PatientRev.

4.     Follow the hashtag #WhyWeRevolt.  Our Tweetchat is anchored around a hashtag (aka a phrase with a # in front of it – it’s how Twitter threads conversations about a specific topic) – our hashtag is #WhyWeRevolt.  You can put that hashtag into search.twitter.com in order to see some of our past discussions, and on the nights of the Twitter chat, including #WhyWeRevolt in your Tweets highlights your contributions to the greater group. 

5.     Check out Why We Revolt.  While Why We Revolt is not required reading for the Tweetchats, it is recommended reading.  Each month, we tackle a chapter or topic from the book and do a deep dive as a group.  You can order a copy of the book here, and there are audio and digital versions of the book as well, if you need instant access.

If you have specific questions, feel free to reach out to the Patient Revolution team at support@patientrevolution.org.  We look forward to chatting with everyone! 

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Join Us on October 15 for the Next #WhyWeRevolt Chat

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On Monday, October 15th at 9 pm ET / 6 pm PT, you’ll find the Patient Revolution team over on Twitter hosting our monthly Why We Revolt book chat. For October, we’ll be discussing solidarity in healthcare. (Check out this video for more on author Victor Montori’s vision for a healthcare system based on solidarity and love.)

To keep up with all the upcoming Patient Revolution efforts, sign up for our newsletter and be sure to check out our blog.  And if you want to share your story, we're always listening.  

September 10th Twitter Chat - Cruelty

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On Monday, September 10th at 9 pm ET/6 pm PT, the Patient Revolution returns to the Twittersphere for another #WhyWeRevolt chat.  (Check out a recap of our debut Twitter chat here.) 

This time, we’re going into full book club mode and will be talking about the Cruelty chapter from Why We Revolt.  To join the conversation, follow @PatientRev on Twitter and keep tabs on the #WhyWeRevolt hashtag

And if you're interested in picking up a copy of Why We Revolt for this and future book club chats, check out this link.  See you on the 10th!

Careful and Kind Care in Nonprofit Quarterly

The Patient Revolution co-founder, Victor Montori, was featured in a recent article in Nonprofit Quarterly, talking about greed, corruption, and the change necessary to realign healthcare:

Establishing trust is the heart of good medicine. But few patients and doctors experience this “caring relationship” anymore. Montori, in his book, Why We Revolt, proffers a solution: a patient revolution demanding what he calls, “careful and kind care,” delivered by a system grounded in integrity not greed. This is not a consumer movement that seeks change within existing structures. Montori is calling for a social movement, where patients—who are also citizens—rise up to say they have had enough.
— Karen Kahn, "When Money Drives Nonprofit Health, Clinician Burnout Follows and Patient Care Falls"