In March, we held our monthly #WhyWeRevolt Tweetchat and our discussions were anchored around the work of being a patient. The Twitter community rose to the occasion; here are some highlights from our chat:
#WhyWeRevolt Q1. Have you ever thought about all the things you do to manage your health? What are some of the things you do, as a patient, that are work?— Carolyn Thomas (@HeartSisters) March 5, 2019
Fistful of daily meds, doc appointments, lab test appts - most "intrusive" to me: ongoing cardiac symptoms to plan around
A2. HCPs don't know 1/2 the stuff I have to do. For example, I can never get across to HCPs ordering blood work that it's really hard for techs to draw my blood. I keep explaining it (and ask that they limit labs to most important ones) but they still don't get it. #whywerevolt— Emilie T (@SweetHiyachica) March 5, 2019
One of the people I care for often minimizes the work they have to do as a patient because they don't want to trouble me as a #familycaregiver -- so they'll say its' no trouble to driving to appointments or won't report a fall for fear I'll travel to where they are #WhyWeRevolt— Geri Lynn Baumblatt (@GeriLynn) March 5, 2019
“This is not a problem of skin in the game & personal responsibility or lack of engagement or activation,” says @vmontori.“It’s fundamentally a problem of capacity & the fact that most people do not live to be great patients; they live to pursue their hopes & dreams.”#WhyWeRevolt— Patient Revolution (@patientrev) March 5, 2019
Follow the Patient Revolution twitter feed @patientrev for details on our next chat!