"A system based on greed will never be good enough. But a system based on solidarity has a chance."
How often do you tell the truth, the whole truth, and nothing but the truth at a visit with your clinician? When your doctor asks, “How often are you exercising,” my inclination is to lean back and move my arms as if I were running. “Exercise? Every day! Nine times a day? A lot.”
Which isn’t always the full truth. What makes honesty so challenging to achieve in the doctor's office? Why do patients feel that total transparency isn’t encouraged, or embraced?
We asked some patients for their perspectives, and here is some of what they shared:
“I actually try to be super honest but sometimes I find doctors to be leading with wanting specific answers. There’s also the guilt. I don't care what the doctor thinks of me but honesty invites more guilt to myself that I'm not doing better.”
“I'm afraid of being labeled ‘non-compliant.’ We have a laundry list of things to do and if I only get nine out of ten done, then I feel like a failure, instead of celebrating the nine things I did well! I struggle with this.”
“I think, for me, I know what I should do. But in reality, doing it every day is exhausting and I get sloppy. But I'm not sure my doctor could ever understand that. So I don't feel I can admit it.”
“Because we know what we are supposed to do, but no one can do the "right" thing 100% of the time and we don't want to be critiqued for it. I LOVE my medical team, but I still don't want them to think I am not 100% perfect.”
Even clinicians found themselves hesitant to share fully during their own visits as a patient. One shared, “I'm a doctor and even I find myself stretching the truth about how much I exercise when I see my endo. It's almost feel more pressure as a doctor to stretch it because I feel there are certain things expected of me- that somehow I'm not allowed to be human.”
Another said, “My perception, when people lie, is that they've been scolded or "yelled at" for not following their prescriptions perfectly, so they are afraid it'll happen again. Once I validate their struggles, the entire conversation changes. Unfortunately, many clinicians don't have time to do that.”
So none of us are perfect, but we're not sure how much imperfection we're allowed to share before we put our care at risk?
A few years ago, we were working with a primary care practice in New Haven to develop our reflection tool. Two of the questions on the document are....
- What is one thing your doctor is asking you to do for your health that feels like a burden or feels harder than it should?
- What is one thing your doctor is asking you to do for your health that is helping you feel better?
We found that people often put the same thing in both categories. From the resulting conversations, it seemed they were looking for a way to say "I'm trying" to their clinician.
"I'm trying to eat better and exercise more. But it is also really hard."
And when they were able to do this, clinicians almost always responded with empathy. The patient's willingness to be vulnerable opened up a space for the clinician to acknowledge that none of us is perfect and making an effort is often the best we can hope for.
So patients - in your next visit, consider telling your clinician what you're trying to do and see if that vulnerability opens up a space for careful and kind care in your visit.
And clinicians, consider what you could be doing to create an environment in which patients feel more comfortable being vulnerable.
Listen to Victor talk about a patient revolution for careful and kind patient care on the Health News Review podcast.
CLINICIANS: Consider sharing a short clip from the podcast in your next all-staff meeting. Maybe the bit about time at the 8:50 mark? What would it mean for us to think about time differently? How do the time limits imposed by industrial healthcare impact your ability to care for your patients?